Legal Disclaimer

Terms and Conditions

This Web site is an educational and informational service provided by the KidneyLink, which is a service of the PKD Foundation, with the express condition that users agree to be bound by the terms and conditions set forth in this User Agreement, as they may be modified from time to time. Your consultation and use of this Web site constitutes your acknowledgment and acceptance of all of the following terms and conditions.


You acknowledge that the information on this Web site is provided "as is" for general information only. This Web site does not offer medical advice or recommendations and individuals should not rely on the information posted on this Web site as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. KidneyLink/the PKD Foundation strongly recommend that care and treatment decisions related to any kidney condition, polycystic kidney disease and any other medical condition be made in consultation with a patient's nephrologist or other qualified health care professionals who are familiar with the individual's specific health situation.

KidneyLink/the PKD Foundation make no representations with respect to the information, services, products or message on this Web site and specifically disclaims any other warranties, including but not limited to implied or express warranties of merchantability or fitness for any particular usage, application or purpose. KidneyLink/the PKD Foundation make no warranties of any kind regarding the operation of this Web site, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements or other code that manifest contaminating or destructive properties and such warranties are expressly disclaimed.

Donation Disclaimer

Please consult your personal advisors on all legal, tax, or financial issues related to your gift or personal matters. Nothing contained on this website or in any of its documents, attachments, or links: (a) should be considered legal, tax, or financial advice, (b) represents the signature of the sender or KidneyLink/PKD Foundation, (c) is intended or written to be used, and cannot be used for the purpose of avoiding tax-related penalties.
For information about the specific tax benefits to which you may be entitled through your charitable gifting of appreciated (or even depreciated) stock or securities, please consult your tax advisor or attorney.

Links from this Web site

 KidneyLink/the PKD Foundation make no representation, warranty or endorsement, express or implied, as to any of the information, services, products or messages on any other Web sites which may be accessed through a hyperlink on this Web site. In particular, these links are provided for convenience of reference only and are not intended as an endorsement by KidneyLink/the PKD Foundation or individual operating the Web site or a warranty or endorsement of any type regarding the Web site or the information, services, products or messages posted on or available from such Web site.

Copyright and Trademark

Unless otherwise indicated, all information contained on this Web site, such as text, graphics, logos, button icons, images, audio and video clips, is copyrighted by and proprietary to KidneyLink/the PKD Foundation. The content displayed on any page of this Web site may be used for personal and noncommercial uses which do not harm the reputation of KidneyLink/the PKD Foundation, provided that the user does not remove any trademarks, copyright and any other notice contained in such content.
The name and mark, KidneyLink and its attendant logos and taglines, are trademarks of KidneyLink/the PKD Foundation and may not be used or reproduced without its prior written consent.


You agree that you will hold harmless KidneyLink/the PKD Foundation and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this Web site or the information, services, products or messages contained in this Web site or other Web sites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this Web site or another Web site to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will  KidneyLink/the PKD Foundation or the contributors of information to this Web site be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages.

Governing Law

This Web site (excluding linked sites) is controlled by the PKD Foundation, which is headquartered in the State of Missouri, United States of America. It can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of Missouri, by accessing this Web site both you and the PKD Foundation agree that the statutes and laws of the State of Missouri, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this Web site. You and KidneyLink/the PKD Foundation also agree and hereby submit to the exclusive personal jurisdiction and venue of Jackson County, Missouri and the United States District Court with respect to such matters. KidneyLink/the PKD Foundation make no representation that materials on the Web site are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Web site from other locations do so on their own initiative and are responsible for compliance with local laws.

Linking From Other Web sites

KidneyLink/the PKD Foundation may grant the owner of a Web site permission to use a hyperlink to this Web site from its Web site, provided: (a) any such link must clearly be marked "KidneyLink;" (b) the appearance, position and other aspects of either the link or the host Web site may not be such as to damage or dilute the goodwill associated with KidneyLink’s or the PKD Foundation's name and trademarks; (c) the appearance, position and other aspects of either the link or the host Web site may not create the false appearance that any other entity is associated with or sponsored by KidneyLink/the PKD Foundation; and (d) the link, when activated by a user, must display this Web site full-screen and not with a "frame" on the linked Web site. The owner of any Web site with a hyperlink to this Web site agrees to the foregoing terms and agrees to delete any such link upon notice from KidneyLink/the PKD Foundation that such permission has been revoked, which notice may be given at any time and for any reason.
KidneyLink/the PKD Foundation is not responsible for the information or materials contained on Web sites linking to this Web site. Links to this Web site are provided for convenience of reference only and are not intended as an endorsement by KidneyLink/the PKD Foundation of the organization or individual operating the host Web site or a warranty of any type regarding the host Web site or the information on the host Web site.

Opt-Out Policy

If, at any time after registering for information or an event, you change your mind about receiving information from us, you have the ability to opt out of being contacted by KidneyLink/the PKD Foundation at any time.

To opt out of receiving e-mails, telephone solicitations or other forms of contact from KidneyLink, send an e-mail to with "Opt-Out" in the subject line, or a letter by postal mail to:

PKD Foundation

ATTN: KidneyLink Opt-Out 

8330 Ward Parkway Suite 510
Kansas City, MO 64114

Please specify which particular type of contact you are choosing to opt out from (i.e. only solicitations, only e-mails, only information regarding a specific event, only postal mail, only third-party e-mails, etc.).

Be sure to include your full name, any business mailings and e-mail addresses. If we are able to locate your contact information based on the information you provide us, it will be removed from the areas you referenced in our databases and mailings lists.





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